Corporate Fitness and Active Aging

It’s National Dog Day!  There has been an outpouring of pet love on social media today.  Clearly people love their four legged friends.  Not only are dogs (and cats) wonderful companions, but owning a pet provides more than just sloppy kisses and mounds of fur.  It’s time to bring that relationship full circle and get active with your pet!  Here are just a few benefits of exercise in animals:

• Helps reduce behavior problems such as chewing and excessive barking
• Improves agility and keeps them limber
• Reduces digestive problems
• Improves sleep and decreases restlessness
• Weight Management

Now that you see your pet’s health benefits from exercise just as your own.  Here are my top 5 things for you to consider and remember when you commit to get fit with your dog!

1. Exercise Partner – Just like humans, dogs can also become obese.  Not only does walking your pet help to wear them out and burn off some energy, but it will help them maintain their weight as well as your own.  It might even end up that your dog pushes you more than you know.  Fido might keep you more accountable than your coworker does at your corporate fitness center.
2. Establish a Smart Routine – Whatever type of activity you and your pet enjoy, fit it in at some point throughout the day. Start with short burst of exercise and work your way up.  Just as you should check with a physician prior to starting a workout regimen, your dog should have a check up to.  It’s important for you to know the needs of your dog. 
3. Swimming – You may have felt a great workout from swimming, less impact on your joints and still gets your heart pumping.  The same goes for dogs.  Consider taking your dog for a swim, whether it’s to fetch a ball or just take a dip.  Larger dogs who may feel the impact of their weight will feel the same relief as you when they get in the water.
4. Dog Park – Visit your local dog park and make some friends, both you and your pet.  Social wellness is just as important as your physical well-being.  We all know dogs need social interaction for behavior reasons, what about you?
5. Hydrate – Water is just as important in animals as it is for you.  Make sure your pet is hydrated when increasing activity levels or when it’s hot outside.  What for signs of dehydration such as excessive panting, weakness, and confusion. 

Now get out and get moving after dinner and show your four legged pal some healthy love! 

Americans are fond of a quick fix, in weight loss in particular. According to the American Society of Metabolic and Bariatric Surgery, surgical weight loss procedures increased from 13,000 in 1998 to 220,000 in 2008. A survey in the United Kingdom evaluated public attitudes toward such cosmetic surgery for weight loss and found that 59% of women would choose surgery over changing eating habits and engaging in regular exercise to lose weight or change their body shape. 

Anecdotally, our corporate fitness staff see these stories in the employees they serve as well. As a nation, we haven’t moved the needle on helping adults get more movement in their daily lives, and the numbers inside the corporate fitness center have peaked as well. So, what are we doing wrong?

Certainly, there are work-related and personal-life pressures that the staff in your corporate fitness center cannot impact, and there will always be a cap on how many employees they can reach. But in some ways, we’ve fallen away from basic services and simple program design as tools to draw participants into the programs. Businesses have committed (right or wrong) their focus to outcomes-based wellness offerings, and looked to biometric data and HRA results for those outcomes. Businesses have also turned (in droves) to wearables as a tool to help employees move more; the jury is still out on their long-term effectiveness. 

NIFS150 Encourages More Physical Activity

In an effort to get back to simple measures designed to help participants (1) understand their fitness level, and (2) move more minutes each day, our staff designed a simple NIFS150 program where participants were encouraged to accomplish 150 minutes of physical activity per week for eight weeks and complete a pre- and post-program fitness assessment. 

Participants were able to earn their 150 minutes anywhere, anytime—we simply wanted them working to achieve the research-backed recommendation from the CDC. We pulled fitness assessments into the mix as a throwback to some older research performed by Dr. Steven Blair and colleagues that was published in the April 1995 issue of the Journal of the American Medical Association. That research showed that improving fitness level (defined by cardiovascular endurance) can decrease mortality risk. 

Forty percent of the initial 700 participants in the NIFS program completed at least 150 minutes of activity per week all eight weeks, and the staff completed assessments on 198 participants. Almost half of the participants indicated that this was the first NIFS program they’ve tried, so we’re pleased we hit a sweet spot for so many new folks! 

More than 75% of participants reported that the challenge helped them be more active than usual. Still, it’s worth noting that only one third of participants actually used the fitness center more during the program. You might think we were disappointed that more participants didn’t flock to the fitness centers with this client to gain their 150 minutes. After all, the program ran through the first quarter of 2015 in Indiana; it’s not like it was prime weather for exercising outside. Our priority with this initiative was to help employees be more physically active. We definitely keep track of visits, memberships, and other fitness center-related metrics, but we think it’s a win that we drew in so many newbies and that participants were more active than usual during the challenge. 

What We Learned from the Data

In addition to gaining some feedback from all the participants, we also surveyed those who completed fitness assessments as part of the program. We learned that

• 70% of those who responded to the survey had never participated in a fitness assessment before.
• 62% are now more likely to be active in their corporate fitness center.
• 70% intend to continue with a periodic fitness assessment to track their progress on fitness-specific goals.

Our staff continue to provide innovative programming for our clients. But this particular program points to just how simple a science-based offering can be yet still create impact. 

How are you creating impact through corporate fitness programming? Looking for more program ideas to get your creative juices flowing? Check out our Best Practices series—click on the button below to find out more. 

I read a blog recently on the Eden Alternative website about the power of language, in which the author quoted Alan A. Watts: “the menu is not the meal.” She was outlining her thoughts about words like “elder,” and “care partner,” and “home”—an important discussion! But the blog also got me thinking (as a good blog should) about lifestyle programming in communities. 

What If the Activities Director Was Called Something Else?

In the last five years, the senior living industry has started to make a title shift away from Activities Director and toward alternatives like Lifestyle Director, Life Enrichment Director, and Program and Events Director. Yet, this subtle shift in position naming, though necessary, is insufficient to make a true paradigm shift in how we support the elders who choose to reside in a senior living community. Changing the name is not the same as changing the notion.

I think the senior living industry as a whole is feeling a nudge (maybe it’s a push) toward doing better for our clientele. Consider the CCRC NameStorm from LeadingAge. The goal was to build a new potential name for Continuing Care Retirement Communities that would resonate with current and future buyers for this kind of product.

The idea about changing your activities department to your life enrichment department is the same: build something that resonates with your market. Still, as the Alan A. Watts quote hits home perfectly, simply changing the name is not enough. You can’t just create new name badges, update the job title on the position descriptions, order new business cards, and call it done. It’s not enough to simply change the name; we have to also (or at least) change the notion, the idea, of what activities can become in senior living. 

In fact, I would posit that you could actually keep the “activities department” if the staff are genuinely focused on building a better lifestyle for each resident. If they understand the personal passions, interests, desires, limitations, and fears of the members and provided “activities” that truly engaged those desires, the name “activities department” works just fine. 

But if your life enrichment department is still focused on filling the calendar to simply entertain residents, they are functioning the same way they were when you called them “Activities.” When they’re taking orders from a vocal minority of residents to drive largely homogeneous activities each month, they’re doing what they’ve always done, regardless of the name change.

Three Ways to Turn Activities into Life Enrichment

So how do we start to make that shift, away from the same old filling-the-calendar senior living activities to facilitating life-enriching opportunities that allow the residents to live the lives they want to live? Here are three ways to start looking beneath the surface of your calendar to cultivate meaningful experiences for your participants.

1. Get to know your customer. How well do you really know the members of your community? Sure, you know names, and there are “regulars” you know better than most. But how well do you know where they came from and what makes them tick? Can you get information from the sales staff discovery process to start building a profile on each member? What questions do you need answered about each resident that could be folded into the discovery process so that newly moved-in members don’t feel like they’re being poked and prodded to provide you with answers? How can you use the intel you get to start building experiences for each resident?
   
2. Get creative with your budget. Budgets are what they are, and changing the name of your department isn’t going to suddenly give you unlimited funds. Yet, if you’re listening to your residents, and understanding how they want to live your in community, you may find that helping them accomplish just that does not require additional FTEs or operating funds. Sometimes pairing folks with common interests can allow an organic opportunity to form without costing the community a thing. For example, suppose, through discovery, you learn that you have four residents who love to play chess and who are passionate about teaching others to play. Once you connect those four members and help them determine times to establish a “club,” or ways to connect with a local after-school program to teach the game they love, you’re on your way to fulfilling a social, intellectual, and vocational pursuit for your members. 
3. Get familiar with the numbers. If you’re in the business of filling calendars, there’s no reason to gather data. You can see from the calendar that it’s full. But if you are focused on building purposeful programming that allows participants to live more full lives, I suggest you start to get a handle on whether your efforts are making an impact. For example, many of your residents may still be working. How does your 10am group fitness class resonate for them? Does it fit their schedules? I’ve heard a lot of directors say that no one will do activities (except the theatre or related events) after 4pm, so they don’t program anything after 4pm. Do you know that because of what happened historically, or do you know that because you know your members and you know the data?

If you agree with these ideas conceptually but you aren't sure how to move forward with them in your organization, let's connect.  We offer a free 30 minute consultation, no obligation.  I'd love to talk about what you see in the future for your community and then work with you on some actionable steps to get there.  

I am a firm believer in massage therapy because a little over a year ago, I woke up in agonizing lower-back pain that did not allow me to move. My first thought was maybe I should go see a chiropractor. I had been to one before, but was not the biggest fan because they cracked my back and sent me on my way after charging $65. 

This time, I did my research and found a well-rounded practice that offered a full evaluation prior to the treatment to be sure they could help me and not further injure my back. Here, they first did a 30-minute session with a massage therapist, applied heat while rolling the back, and then I saw the chiropractor. In my situation, I needed the full run-through. Now that my injury is better, I can maintain the relief with strength exercises, stretching, and massage. 

So when I began working at a senior living community and found that the community had a regularly visiting massage therapist, I thought, “How very lucky we are to have a certified massage therapist!” She has her own room and setup that the resident can enjoy, or she can meet them at their apartment if that is more comfortable for them. I have found, though, that many CCRC residents do not take advantage of this resource just because they aren’t fully educated on the benefits.

How Often Should You Visit a Therapist?

Believe it or not, it can be to your greatest advantage to visit a massage therapist a two or three times a month. Often, it is thought that massage is a luxury visit to a spa once in a blue moon for some rest and relaxation. While it is great for that, massage is something that can be done in a less expensive setting and more often so that you can reap the benefits. 

What Is Massage?

What exactly is massage? Massage is a general term for pressing, rubbing, and manipulating the skin, muscles, tendons, and ligaments. The combination of movements and sequence in which the therapist works is meant to alleviate pain, reduce the stress we carry in that area, and treat a wide variety of conditions. And the great thing? If it isn’t your cup of tea, you can just forget about it and try something else. 

Types of Massage

There are different variations of massage, depending on what the need is. Need relaxation? You’ll want a Swedish massage. Have a pain in the low back? You may need a deep-tissue or trigger-point massage. The great thing is, the massage therapist will know which is likely best for your situation. 

Benefits of Massage Therapy

While more research is needed to confirm the benefits of massage, some studies have found massage may also be helpful for the following conditions:

• Anxiety
• Digestive disorders
• Fibromyalgia
• Headaches
• Insomnia related to stress
• Myofascial pain syndrome
• Paresthesias and nerve pain
• Soft tissue strains or injuries
• Sports injuries
• Temporomandibular joint pain (TMJ)

Here are some additional benefits of massage therapy.

Ask Your Doctor

One last thing, massage isn’t meant to replace regular care from your physician, and when a member complains of a pain that sounds most like a muscle or ligament pain, I suggest they ask their doctor whether seeing a massage therapist would be a good idea. 

When Massage Might Not Be a Good Idea

If one of these is something you suffer from, massage may not be right for you: 

• Bleeding disorders or take blood-thinning medication
• Burns, open or healing wounds
• Deep vein thrombosis
• Fractures
• Severe osteoporosis
• Severe thrombocytopenia

Before I go, I want to encourage you to take a look at this alternative medicine and the role it can play in senior wellness. It has relatively low risk and can be very beneficial. Does your community offer this onsite? Would you like for them to? If you have a leisure services or wellness department, that might be the place to start. 

“Meditation is the ultimate mobile device; you can use it anywhere, anytime, unobtrusively.” ― Sharon Salzberg

So you have some stress in your life. You might turn to exercise to deal with these stressors. Or maybe you had a date with your couch and Ben & Jerry or Sam Adams? Did you zone out to the latest CSI or “reality” show? Out of these three, exercise is the best choice. But what do you do when you come home from a horrible 12-hour day and you don’t have any juice left for exercise. Do you have a room, a floor, and 20 minutes? Why not try a little meditation?

Meditation has been practiced for thousands of years. Initially, seekers and gurus used it to get in touch with a spiritual and mystical dimension. Practitioners would meditate, in silence, for days at a time in order to reach a desired state of mind. In modern times, we can’t carve out days to reach a higher spiritual dimension (try asking your boss for a little personal time off to meditate for three to four days), but we don’t have to commit hours and hours to the practice to reap the rewards. Meditation isn’t just for reaching a higher plane. There are proven emotional and physical benefits to practicing it as well.

Benefits of Meditation

According to the folks at the Mayo Clinic we can gain the following emotional benefits:

• Gaining a new perspective on stressful situations
• Building skills to manage your stress
• Increasing self-awareness
• Focusing on the present
• Reducing negative emotions

If you feel like you are even keeled most of the time, meditation can help to control some of these chronic conditions:

• Anxiety disorders
• High blood pressure
• Pain
• Sleep problems
• Asthma
• Cancer
• Depression
• Heart disease

Famous People Who Meditate

At this point you might be considering meditation as a real prospect to achieving a healthier and happier you, but you still are on the fence. Sitting still and quieting your mind is that beneficial? Well these folks seem to think so, and they are pretty successful. A bunch of celebrities (and high-powered business folks) meditate, and I looked up a list to share with you. Check out who is getting in their daily silence:

• Sheryl Crow
• Paul McCartney
• Katy Perry
• Jennifer Aniston

Those are just a few who practice meditation. Their names might not surprise you, but these might:

• Rupert Murdoch
• Hugh Jackman
• Howard Stern
• (and this one really shocked me) Clint Eastwood!

Getting Started with Meditation

So now that you are convinced that meditation is worth a try, what do you need to start your practice? The best news of all is that you don’t need anything. I have found some great resources online and some terrific podcasts on iTunes. Check out these websites for free guided meditation scripts, music, and mantras:

• Free Meditation Info
• How to Meditate

Check out these podcasts:

• Meditation: Ram Dass Here and Now
• Intuitive Self Healing Meditation: Meditation Oasis

Even Pandora has a Meditation station with terrific music to quiet the mind, and to help you find your inner peace.

Meditation often goes hand in hand with yoga, and here's some information about yoga at work.

So go out and find your inner self, quiet the thoughts, and open your mind!

Recently we were challenged at our senior community to increase our exercise and record it to send to our corporate office, in hopes of raising awareness of how important exercise is for those who have Alzheimer’s and those hoping to prevent it through senior fitness.

An Exercise Challenge for Alzheimer’s Awareness

The Goal: Each community needed to accumulate around 1,500 hours of exercise in 60 days, which would translate to 100,000 total hours from all communities.

The Prize: The corporate office would donate $10,000 to the local Alzheimer’s Association chapter.

The great thing about this challenge is that we already have many group exercise opportunities where hours are easily accumulated, as well as a fitness center that members can utilize. But we wanted to amp up the amount of exercise residents were doing because, after all, it is a challenge to exercise more to bring awareness.  

While explaining this challenge to the residents and fielding questions the following weeks, I found that many residents and members did not know what was considered exercise. I was getting questions left and right, “Is this exercise? Does this count?” 

What Counts as Exercise?

So here is the thing: exercise doesn’t have to be a hard workout routine only in a fitness center or group fitness setting. Some folks feel as though that is what exercise is, and I am happy to break the news that it is not the only way to get in exercise! Guess what, things that you enjoy as well as activity needed for healing count as exercise!

Here is a list of the “does this count” exercises residents asked me about. 

• Hitting golf balls
• Physical therapy
• Occupational therapy
• Corn toss 
• Stretching before getting out of bed 
• Walking the community halls
• Gardening/weeding
• Wii and Wii Fit games

If a regimented fitness center routine is what you like for your workout, that is great!  But, if you need something else to hold your interest, whether it is a game like corn toss or working long hours in your garden, it is best to do an activity that you will stick with. And if you want to add intensity or are having a hard time finding what suits your interest, that’s the best time to consult with your fitness specialist to plan out exercises or activity that are best for you!

Throughout 2015, we’ll be blogging about our dreams for corporate wellness, fitness, and aging well. Some of the content will represent a gentle “poking fun” at the industry, but it’s all written to stimulate thought about what really could be if we put our heads together and started mapping out what’s really possible in the realm of individual wellbeing. We hope you’ll join the conversation by commenting on the blogs, giving us additional ideas about which topics to explore, and by finding us on Twitter at #wellnesswhatif.

Businesses need top performers in order to survive. We need sales staff who are heavy hitters, research staff who are actually rocket scientists, and customer service professionals who can turn any frown upside down. You know who those folks are in your organization, that top 5% of all performers. In some cases, they might be unsung heroes, but at a lot of businesses, the best among us are often publicly lauded. They are the elite.

Changing the Definition of “Elite”

Not everyone can fit into that narrow industry-specific definition of elite. But maybe, if business leaders opened their minds about what counts as elite, we could have more than one class of top-tier performers.

What if you didn’t have to exceed your sales quota to be considered among the elite at your worksite? Don’t get me wrong. You’d still have to work really hard. After all, becoming top tier is definitely hard work. Some would say rising to the top requires strength, agility, and grace under stress.

According to a study published in the American Journal of Preventive Medicine, researchers at the Pennington Biomedical Research Center found one way to get into the top 5% is to sweat. In their analysis of the American Time Use survey, they concluded that only 1 in 20 Americans engages in vigorous exercise (the kind that makes you sweat) on any given day. 

That’s right, a paltry 5% of us are working hard enough to actually sweat when we work out.

What Does This Have to Do with Employee Health? 

The way to sustained weight loss toward a healthy weight is through a healthy diet combined with prolonged cardiovascular exercise (45 to 60 minutes) at least five days per week. Employers: If you want a workforce that is at a healthier body weight, you have to (among other things) create an environment that supports and provides opportunities for your employees to work out hard enough to sweat. You need to build a corporate health culture that supports breaking a sweat in your worksite fitness center, or through another avenue of the employee’s choice.

Certainly, there’s more to individual well-being than being physically fit. But I wonder how many employees hold back on working out because of their environment (lack of access, lack of support). What if businesses publicly rewarded the exercising (aka sweaty) elite alongside the elite sales force and recognized the importance of employee health and fitness?

Download our whitepaper for tips on adding exercise to your worksite wellness program. 

It is safe to generalize and say the majority of people put a lot of trust in their doctor and admire them simply for their level of education. After all, they did go through many years of extensive and exhausting studying and training in order to earn the title of “Doctor.” They even have a decent health grade and framed certificates around the office, but does that mean we should put all of our faith in them and make them 100% responsible? Well, not exactly.

There are a lot of checks and balances in place when it comes to health care. You have nurses, nurse practitioners, pharmacists, physician’s assistants, physicians, surgeons, and more, but what if all of these fail? Though it may be rare, it does happen. So who should ultimately be accountable? You. 

Too often, patients sit in a doctor’s office and are given loads of information, which might as well be told in a foreign language, all wrapped up in 5 minutes. The patient sits, smiles, and nods, thinking (or pretending) that they followed every detail that was spilled out to them. We assume the medications and dosages we are being prescribed are necessary and safe.

Kelly’s Story

A friend of mine, who we will call Kelly, was not feeling well and had arrangements to fly later in the week. To avoid being uncomfortable during her travels, Kelly reached out to her doctor. Kelly’s doctor was out of town, but the partnering doctor was available to see her. Without hesitation, the partnering doctor prescribed Kelly an antibiotic, and, without any questions, Kelly picked it up at her local pharmacy. A week later, Kelly felt extremely foggy-headed and enormously sluggish, and started developing rashes, painful headaches, very achy joints, and more. 

Kelly put her week on replay, trying to figure out what she had done differently that could cause such a major downward spiral in her physical health. Then it hit her: the antibiotic. She quickly started searching for answers and within seconds, from a simple Google search, she found it. Kelly was prescribed a sulfa drug, which is the number-one drug that should be avoided if you have lupus. Because the doctor seemingly did not even glance at Kelly’s files, the pharmacist did not pay attention to her log of current medications, and Kelly did not think twice about a doctor’s advice, she had the worst lupus flareup she had ever experienced.

How to Advocate for Your Own Health Care

Why do we assume all instructions are best for us because of a health professional’s level of education and authority? It is our body, yet we blindly and mindlessly do as we are told. Why is it difficult to be vulnerable and admit that we do not understand the information we are given during our visits? When did we lose our curiosity or stop asking “why?” You are at the office seeking medical advice, so seek it! Here’s how:

• Ask questions.
• Have logs and questions written down before you walk into the office.
• Make the doctor or nurse write down information for you.
• Ask for the doctor to explain what the lab results mean, not just rattle off numbers that you can read yourself. Then ask for copies of the lab results.
• Remind all health professionals involved of your medications and lifestyle changes.
• Request print materials related to your diagnosis. If your doctor is not willing, it may be time for a new doctor.

Remember, you are part of the team that makes decisions toward improving your health and wellness. Be involved, be informed, and be okay with asking for help when you don’t understand. Be your own advocate.

Your health is important, check out our quick read to see why exercise is important in aging well, download it below!  

Our use of the word “wellness” in senior living is confusing and potentially problematic for the consumer. When the possible definition by organization for “wellness” swings all the way from a few group fitness classes at one community to a full-blown medical clinic in another organization, it’s challenging to succinctly define what is being offered under the wellness banner. 

Sometimes I visit a community and they have a wellness director who is an RN with primary responsibilities for running the community’s outpatient clinic and helping residents navigate their health care needs. In other cases, I interact with an individual at the community level whose title is wellness director, but whose primary roles are focused on running the fitness program. Those two individuals have two very different focus areas, diverse areas of expertise, and they offer two entirely different value propositions for prospective residents. And neither of them paints a full picture of what community wellness can be.

How you define your community in the area of wellness can be a point of distinction and a clear competitive edge for your business. But I wonder if that definition is best suited to be made at the community level or if there is a need, or even better a benefit, to defining it at an industry level. LeadingAge has initiated a “NameStorm” to find a new term for “continuing care retirement community” (CCRC). Is there a need for this kind of industry-wide focus on how we universally define wellness in senior living?

If we use the well-recognized dimensions of wellness (and I’ll go with the seven defined by the ICAA) as the means to define individual wellbeing, then the essential duties of the RN clinic director and the fitness program manager fold into various dimensions. But so do the essential duties of several other common jobs at a CCRC, including the activities director, the social worker, the dietician, the chaplain, etc. I could argue that each employee at the community has some portion of his essential duties impacting resident wellness.

I think, in a lot of cases, we get wellness all wrong. We want to box it into neat compartments, but it really spills out to all areas of the organization. Wellness is about building meaningful lifestyle opportunities for residents. It’s about honoring who they are as individuals and finding ways to help them tap into what motivates them, what provides them with purpose, and what keeps them engaged in life.

As I’ve started shifting my view on resident wellness in senior living to this broader perspective, I’ve started wondering whether resident wellbeing doesn’t need to sit a little higher in the organizational chart. Wellness isn’t just fitness and it’s not just activities. It doesn’t belong under either of those “departments.” It’s not limited to nutrition or spiritual designations, and it’s not focused on health care and clinical services.

Perhaps it’s the culture we’re trying to build.

But if that’s true, if wellness provides a cultural focus for our organizations, then each employee needs to have a stake in what it means to provide person-centered opportunities for well-being. And that message needs to come from the top. It can be supported by a well-developed employee wellness offering, as well (which is being discussed more and more in senior living). It can get folded into employee goals, job descriptions, and team meetings. And while one person should probably have ultimate responsibility for wellness in the community, it cannot operate in a silo apart from other elements that are unique to what your community offers. (This post talks more about how the various departments can collaborate better.)

How are you cultivating wellness beyond your fitness programming, your activities calendar, and your clinic?

Download our whitepaper on how you can create a culture of wellness in your senior living community.

During my morning commute a few months ago, I switched on the radio and caught the tail end of a brief NPR story about doctors not communicating to their patients when they are diagnosed with Alzheimer’s. Because I am surrounded by this disease in the workplace and have experienced it first-hand in my family, I was quick to become empathetic and my heart sank into my stomach. It just seemed so unfair and, well, wrong.

The next day, I decided to dig a little more deeply and find the article in writing. Maybe I missed some important details at the beginning of the story. Maybe the twist was that these patients were being diagnosed but simply forgot after they walked out of the doctor’s office doors, because, after all, they do have memory loss and dementia. Unfortunately, that was not the case.

According to this specific study, an alarmingly low number of patients with Alzheimer’s (only 45%) claimed that they were given this diagnosis by their doctor. When the study looked past the patient’s input, still only 53% of family members or caretakers reported being aware of the diagnosis. The reasoning behind this sits among a variety of excuses, ranging from the doctor having limited time in each appointment to the doctor simply feeling uncomfortable.

Is It Acceptable to Withhold the Diagnosis?

Are these legitimate excuses? Is it ethically acceptable to withhold information that is unknowingly being written down in your medical records just to save one or both parties from feeling uncomfortable? 

Sure, it feels terrible to look someone in the eye and tell them devastating news, but when a person is relying on someone, their doctor in this case, to keep them informed, the doctor needs to take responsibility here. Withholding this information puts the patient at risk of harming himself, as well as those around him. What if those around a person with Alzheimer’s believe these forgetful moments are merely part of a normal aging process? Maybe one day the person with Alzheimer’s cannot recall a street name, which may seem normal, but what if the following week(s) lead to such scenarios:

The person with Alzheimer’s…

• Goes for a walk or bicycle ride without telling anyone and gets lost.
• Accidentally leaves the gas burner on all day while home alone.
• Needs help but forgets how to dial the phone.
• Leaves the water running in the bathtub, does not realize it, and goes to bed.
• Gets in a pool alone and forgets how to use their legs, loses footing, and goes under.

Some of these examples may seem extreme, but they are actually scenarios that either myself or someone I know has personally witnessed. So many dangerous situations can be avoided if family or close friends are aware of the diagnosis. And though there is no cure, doctors are finding medications that can help slow down the disease process, and researchers are finding more and more ways for people with Alzheimer’s to gain a better quality of life through means such as music, aquatics, memory care, and more.

I often see family members or caretakers get frustrated, and even angry, with people who are forgetful. When we are able to have a medical diagnosis, can realize that it is truly a disease and out of the person’s control, and can view the whole picture, we are opening a door to having more compassion and understanding for the situation a person with Alzheimer’s is facing.